Sunday, June 22, 2008

Bringing her home didn't work

Chris came home on Friday at about 5:30. She was doing ok. The nurse was there waiting for her. She was fine for the first 6 hours. She ate a cup of broth and 2 small bowls of orange sherbert.

About 3 am I woke up and wasn't sure why. I went back to sleep. In the morning the nurse informed me that Chris had been throwing up since 3 am. She was throwing up bile and blood. The phenergan suppositories weren't working. She was like that all day.

An RN came at 1:00 to evaluate her. The woman was a complete bitch. She said that Chris' body just needed time to adjust going off IV phenergan and transition to the suppositories. Time isn't something Chris has and the idea is to make her comfortable.

She continued to get sick and only went to the bathroom once the entire day. She refused to eat or drink anything. She also refused all of her medications.

The nurse wasn't happy with the RN's response so she told me to call the nursing supervisor. So I did and at about 6:30 the second RN came. She actually called the on call doctor (which the first RN never did). He instructed us to call 911 and get her to the hospital to stabilize her. They would put her in a hospice contract bed and give her the phenergan she needs hopefully by IV.

So we called 911 and they were there within 10 minutes. They wanted to give her an IV of sugar water since her glucose was under 20. We refused since she is a hospice patient, so they gave her a shot to raise her blood sugar. I picked up mom at her house and she and I headed to the ER.

She continued throwing up at the hospital and seemed to be getting worse.

Once we got in we instructed the doctor that she was a hospice patient and we needed an IV for medications only. They gave her a shot of Phenergan and dilaudid. After about 10 minutes she started to relax. Mom and I told her we were going to leave.

I got home around 9. At 10:30 Chris called me to let me know that she was comfortable and that the Phenergan shot worked. We thought that we were going to lose her last night and she thought she was gone too. I asked her if she wanted to die last night and she said, "no, not like that". I then asked her if she was ready to go and she said yes. So now we are trying to get hospice to let Chris spend the rest of her days comfortable at the hospital. She doesn't need to be at home. At least we have her close to home now.

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