Thursday, June 12, 2008

Almost Done with TPN

Christine is still being weaned off the TPN. They are giving her 40ccs and hour. She will be completely off of it by tomorrow afternoon.

The social worker came to see Chris today and she talked to me as well. She needed to know if we had any “discharge” plans. I had no clue what she was talking about. It turns out that hospice is very short term. If she is not deteriorating quickly enough she will be discharged from the hospital. If this occurs we will need to figure out where she will go. Most likely we will have to bring her home as we can’t afford anything else. We will have a nurse available to us daily just not 24 hours. Hopefully if this does happen it will be when she is completely confined to a bed so that mom doesn’t have to do much for her during the day.

My dad is going to see Chris today as well. He is still at it. He is not happy that they are not giving her IV fluids. He does not understand that hospice will not give her continual IV fluids because that is life prolonging. If she becomes dehydrated they will give her enough IV fluids to stabilize her and that is it. This was all explained to us the other night and he is absolutely clueless about it.

I understand that my dad is having a hard time dealing with this but he is making things so much harder on Chris and us. We are just trying to do the best thing for her and he obviously thinks that we are making the wrong decision. He hasn’t been the one taking care of her. He doesn’t know squat. I wish he would just leave her alone. I would hate for her to have to tell him to not come and see her anymore, but if he keeps it up it just might come to that. What concerns me is what he will try to do when she is unconscious. I know he will try to fight to put her back on life support. Thanks to her living will that is not happening.

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